Lower Limb Amputation in Young People
Research type
Research Study
Full title
Understanding the impact on activity limitations and participation restrictions of living with major lower limb amputation as a young person
IRAS ID
334095
Contact name
Daniel Powell
Contact email
Sponsor organisation
Research Governance, University of Aberdeen and NHS Grampion
Duration of Study in the UK
1 years, 5 months, 31 days
Research summary
A limb amputation is a life-changing event, that affects an individual’s mobility, participation in daily activities and quality of life. Most studies examining the impact of lower limb amputation involve older adults. Consequently, we do not understand how living with major lower limb amputation (amputation above the ankle joint) affects younger people. Here we will use the World Health Organisation’s International Classification of Functioning, Disability and Health model of health outcomes (WHO-ICF) as the theoretical framework to understand the predictors of quality of life in young people with major limb amputation.
Two studies will be conducted with participants recruited from five specialist prosthetic centres in Scotland, West of Scotland Mobility and Rehabilitation Centre (WestMARC), Tayside Orthopaedic & Rehabilitation Technology (TORT), Mobility and Rehabilitation Service (MARS), Raigmore Hospital and Southeast Mobility and Rehabilitation Technology (SMART). Study 1: Survey: a self-report on-line survey will measure components of the WHO-ICF model of health outcomes. This survey will identify the predictors of two components of quality of life, namely, activity limitations and social participation in a large group (n=193) of young people with major limb amputation. Study 2: Case Studies: participants in the survey will be able to volunteer to take part in one of a series of quantitative single case studies (up to 20 case studies). For 12 weeks, participants will complete brief daily measures of the components of the WHO-ICF model and wear an accelerometer to objectively measure activity. Time based analyses will identify which of the predictors, identified in study 1, are able to explain day-to-day variability in individual quality of life.
The two studies will provide an understanding of the factors that explain differences in quality of life between young people and changes in quality of life within an individual. This understanding can be used to inform supportive interventions for young people.REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
24/SW/0097
Date of REC Opinion
29 Aug 2024
REC opinion
Further Information Favourable Opinion