Looking After a Loved One Receiving Palliative Care; A Male Experience

  • Research type

    Research Study

  • Full title

    Looking After a Loved One Receiving Palliative Care; A Male Experience

  • IRAS ID

    139665

  • Contact name

    Rebecca Judd

  • Contact email

    rxj241@bham.ac.uk

  • Sponsor organisation

    University of Birmingham

  • Research summary

    Carers UK outline that there are currently 6 million adults made up of friends, family and relatives providing unpaid care in the UK (excluding Scotland; Buckner & Yeandle, 2011). This is an increase of 629,000 people over a ten year period. It is estimated that the services lay carers provide are worth £119 billion of care per year (Buckner & Yeandle, 2011). Men make up 42% of the carer population however research of male lay carers is limited. We know that existing literature identifies differences in the way in which men and women seek help for themselves whilst providing care for a loved one. For example, men are more likely to be reluctant to seek help especially when it comes to psychological and emotional support for themselves (Fromme et al, 2005; Ussher & Sandoval, 2008). Caring for someone close, such as a partner, wife or husband, who is dying is an incredibly emotive time, however there is little research into caregiving for a partner at the end of life.

    This research project aims to explore and gain an understanding of male lay carers’ experiences of help seeking for themselves, whilst caring for a dying loved one. This will be the first research project to explore this issue and will do so using semi-structured interviews conducted with participants on an individual basis. The data will then be analysed using Interpretative Phenomenological Analysis (IPA; Smith, Flowers & Larkin 2009), providing information and understanding regarding the lived experiences of individuals and how they make sense of them. It is hoped that the research will illuminate ways in which male lay carers caring for their partner can be best supported by professionals and services to ensure that they are offered and receive the appropriate care for themselves at such a testing time.

  • REC name

    West Midlands - Solihull Research Ethics Committee

  • REC reference

    14/WM/0062

  • Date of REC Opinion

    20 Mar 2014

  • REC opinion

    Favourable Opinion