This site uses cookies. By continuing to browse the site you are agreeing to our use of cookies.

Find out moreĀ here.

Longer-term support for stroke survivors and their carers

  • Research type

    Research Study

  • Full title

    An evaluation of a service improvement initiative to improve longer-term support to stroke survivors and their carers (LoTS-2-Care)

  • IRAS ID

    168872

  • Contact name

    Anne Forster

  • Contact email

    a.forster@leeds.ac.uk

  • Duration of Study in the UK

    1 years, 0 months, 0 days

  • Research summary

    The proposed study is part of an NIHR funded five year programme grant which seeks to develop and evaluate key aspects of a replicable system of longer term service delivery 'care strategy' for stroke survivors and their families. We have used a technique called intervention mapping to develop a strategy based upon the needs of stroke survivors and what helped and hindered them to address these needs. The strategy has also been informed by our knowledge of the capacity of current longer term stroke services.
    The purpose of the present study is to evaluate and refine this strategy in three longer term stroke services. The proposed study involves five interlinked components:
    1) Action Research: a service improvement approach to engage staff, stroke survivors and carers in a cyclical process to preliminarily test and refine the care strategy.
    2) Outcome Measures: Stroke survivor and carer self-completed
    questionnaires will be collected to assess the usefulness of potential outcome measures ahead of the planned feasibility trial.
    3) Semistructured
    Interviews: Interviews will be completed with a sample of stroke survivors and their carers to obtain feedback on the intervention.
    4) Expert Panel: The suitability and accessibility of current psychology services to meet the needs of stroke survivors
    will be reviewed by an expert panel using case studies from the pilot sites.
    5) Expert Focus Groups: At the end of the pilot study, expert focus groups (consisting of staff from the centres and national experts) will be held to draw together the lessons and experiences learnt through this pilot study.

    This study will allow our unique longer term care strategy to be developed in practice and made suitable for use in different models of stroke service amongst survivors and carers with diverse needs. The next step will then be to test the refined strategy in a large feasibility trial.

    The purpose of this study is to observe a service improvement process which will be developed by a group of staff who
    will meet regularly and provide a basis to practically test out the care strategy. The strategy will be developed in practice
    and made suitable for use in different models of stroke service amongst survivors and carers with diverse needs.

  • REC name

    Yorkshire & The Humber - Bradford Leeds Research Ethics Committee

  • REC reference

    14/YH/1306

  • Date of REC Opinion

    30 Dec 2014

  • REC opinion

    Favourable Opinion