Living with Vulval Lichen Sclerosus: A Mixed Methods Study
Research type
Research Study
Full title
Living with Vulval Lichen Sclerosus: A Mixed Methods Study
IRAS ID
304103
Contact name
Sophie Rees
Contact email
Sponsor organisation
The University of Warwick
Duration of Study in the UK
1 years, 1 months, 28 days
Research summary
Lichen Sclerosus (LS) is a chronic condition affecting the area of skin around the genitals. This study is about vulval LS which affects the skin around the outside of the vagina. It causes symptoms including intense itching, burning, and painful cuts in the skin. It can lead to changes in the structure of the genitals, such as narrowing of the vaginal entrance, which can require surgery. And it can cause problems with normal everyday activities such as going to the toilet, dressing, sitting or walking, and sexual activity.
The aim of this study is to understand individual's experiences of vulval LS and its impact on their lives. We have undertaken semi-structured interviews with 20 people diagnosed with vulval LS to explore their experiences of everyday life with LS, the impact of the condition on their identity, experiences of seeking/accessing medical care, and attitudes towards LS treatments. Based on these findings, we have developed a survey to send to a wider sample of people via their GP surgeries. Closed and optional free text questions will be used. The survey will have three elements: diagnosis, symptoms and treatment for vulval LS; the impact of vulval LS on quality of life; and future research into the treatment or management of vulval LS.
REC name
East Midlands - Leicester South Research Ethics Committee
REC reference
21/EM/0274
Date of REC Opinion
18 Dec 2021
REC opinion
Further Information Favourable Opinion