Living well with multiple LTCs? Young people's care experiences_V1

• Research type

  Research Study

• Full title

  Living well with multiple long-term conditions. Interrogating young people's experiences of integrated care

• IRAS ID

  288218

• Contact name

  Tracy Whittle

• Contact email

  T.Whittle2@brighton.ac.uk

• Sponsor organisation

  University of Brighton

• Duration of Study in the UK

  1 years, 10 months, 30 days

• Research summary

  Young people (aged 10-24years) make up a small proportion of those living with multiple long-term conditions (LTCs) but within this cohort there are inequalities with an increased prevalence of these young people living in socio-economic deprived communities, having low educational attainment, being female and living with a learning disability.
  Young people’s experiences of integrated care have focused on the transition from paediatric to adult services and along single disease care management pathways. However, it is in adult services where young people are more likely to disengage from services with negative consequences for them and the health and social care network.
  Learning to live with multiple LTCs requires young people to reconcile their conditions within their daily lives and in relation to their self-identity. In particular, the early process of adaptation may be significant for establishing self-management behaviours.
  Working with two GP practices within a primary care network whose catchment includes areas with the highest levels of multiple deprivation in Brighton, this study will recruit up to 30 young people aged 18-24 who will be living with 2 or more LTCs, have a moderate frailty rating and have had care from a minimum of three health and social care services. They will be invited to take part in two semi-structured interviews a week apart which will be conducted over the telephone. The interviews will chart their experiences of care services and relational networks to explore their meanings and contributions to the early adaptive process. Features of services and relational networks that support an early adaptive process that nurture self-management will be identified to inform the future care and support of young people living with multiple LTCs.
  This study is funded by the Economic and Social Research Council through the South Coast Doctoral Training Partnership
  

• REC name

  East of England - Cambridge South Research Ethics Committee

• REC reference

  20/EE/0288

• Date of REC Opinion

  1 Feb 2021

• REC opinion

  Further Information Favourable Opinion