Living well and enhancing active life: The IDEAL-2 study
Research type
Research Study
Full title
The IDEAL-2 study: Improving the experience of dementia and enhancing active life: a longitudinal perspective on living well with dementia
IRAS ID
244807
Contact name
Linda Clare
Contact email
Sponsor organisation
University of Exeter
Duration of Study in the UK
4 years, 5 months, 31 days
Research summary
The aim of the IDEAL-2 programme is to provide evidence about living well with dementia, service use and areas of unmet need for people with dementia. It will build on the IDEAL cohort of 1550 people with mild-to-moderate dementia and 1286 carers, interviewed initially between 2014 and 2016 and followed up 12 and 24 months later.
The central element of IDEAL-2 is three further yearly follow-ups of the IDEAL cohort. At the time of the first follow-up we will enrich the cohort with additional participants from groups that were underrepresented in the original cohort. We will link the cohort data with administrative data to obtain information about health service use. This will be supplemented by five linked studies; the programme consists of six studies in total:
Study One: IDEAL-2 cohort, involving three further yearly follow-ups of the IDEAL cohort including new participants, and data linkage – subject to NHS HRA and Scotland A Research Ethics Committee (REC) approvals.
Study Two: Determinants of service use patterns and costs in the IDEAL-2 cohort – this study involves analysis of IDEAL-2 cohort data collected under Study One from a health economic perspective by members of our team, and does not require additional approval.
Study Three: Co-production of new measures of ‘living well’– subject to University of Exeter REC approval.
Study Four: Perspectives of people living with advanced dementia - subject to NHS HRA approval.
Study Five: Perspectives of people with dementia from Black, Asian, and minority ethnic groups - subject to Brunel University London REC approval.
Study Six: Perspectives of people living with undiagnosed dementia – subject to Wales REC 5 approval as an amendment to the CFAS-Wales study ethics application (reference number 10/WNo01/37).
We are applying for Scotland A REC approval for Study One (and Study Two) from the above list.REC name
Scotland A: Adults with Incapacity only
REC reference
18/SS/0037
Date of REC Opinion
30 May 2018
REC opinion
Further Information Favourable Opinion