LIVING V1.0

• Research type

  Research Study

• Full title

  Transforming supportive care for people living with lung cancer when you have never smoked [LIVING]

• IRAS ID

  356843

• Contact name

  Susanne Cruickshank

• Contact email

  Susanne.Cruickshank@rmh.nhs.uk

• Sponsor organisation

  Royal Marsden NHS Foundation Trust

• Duration of Study in the UK

  1 years, 2 months, 30 days

• Research summary

  Background:
  The incidence of lung cancer in never smokers (LCINS) makes up 10-25% of all cases diagnosed globally and is the 8th most prevalent cancer in the UK. It is usually diagnosed at stage 4. The focus of most of the research in this field is the tumour itself, molecular understanding, its clinical detection, treatment and response. This knowledge has changed the treatment landscape, and improved survival outcomes. However, there is little research that focuses on what someone with LCINS thinks and feels, perceives and makes sense – their lived experience and that of their carer.

  Aim:
  To understand what supportive care is needed for people with LCINS.

  Objective: To explore the experiences of people with a diagnosis LCINS, on and after treatment, and the experiences of their carer.

  To explore staff experiences who provide support to people with LCINS.

  Method:
  We will ask people with LCINS having treatment at the Royal Marsden NHS Foundation Trust if they wish to take part in a one-to-one interview. They will be asked to nominate someone who they see as their significant other/support person who is also willing to be interviewed. We expect to interview up to 20 people, and separately interview the same number of significant others. We will ask staff (n=6-10) involved in the care of people with LCINS to take part in a focus group.

  The interviews and focus group will, with permission, be audio recorded and transcribed. Data be analysed using a research method specifically designed to make sense of the experiences of a small group of people through in-depth interviewing.

  This study is funded by a grant from the Ruth Strauss Foundation. We anticipate findings will give us greater understanding of the experiences of people with LCINS and their carers and help us develop a support package specific to their needs.
  

• REC name

  Yorkshire & The Humber - Leeds East Research Ethics Committee

• REC reference

  25/YH/0178

• Date of REC Opinion

  15 Sep 2025

• REC opinion

  Further Information Favourable Opinion