Lived experiences of the transition for young adults with CHD 1.0
Research type
Research Study
Full title
A hermeneutical phenomenological study exploring the perceptions and lived experiences of the service transitional process of young adults with congenital heart disease
IRAS ID
273980
Contact name
Stephen McKeevar
Contact email
Sponsor organisation
St George's and Kingston University London
Clinicaltrials.gov Identifier
n/a, n/a
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
The transition from paediatric to adult service forms an important aspect in the lives of those born with a heart condition as they become more independent in managing their health. Due to advancements in surgeries and procedures, adults with congenital heart disease are now outnumbering paediatrics on a 2:1 ratio, indicating the ever-growing numbers of patients who will experience the transitional process. Transition involves educating patients on subjects such symptom recognition and management, career choice, sexual health and lifestyle changes, in order to manage their heart condition. Therefore, the research project aims to explore the meaning of this transition experience for young adults within St Bartholomew’s hospital.
The research will be carried out by undertaking semi-structured, one-to-one interviews with the researcher to allow participants to further explore their experience. The interview time will be approximately 45-60 minute and will take place at the hospital site. Interviews will be audio-recorded on a dictaphone device. Once the interview has finished, the recordings will be taken away, transcribed and will be analysed in a structured format in order to appropriately interpret the findings.
The study time will be approximately 6 months in total between recruitment of participants, data collection through interviews and analysis of the data collected. However involvement of participants is only required during the interview stage.
The study will be carried out under supervision of the chief investigator as the academic supervisor.
The results of the study will aim to identify the factors which affect transition experience, and how the NHS can improve practice in transition services for the future. The results will be disseminated to the trust, will aim to be published in a peer review journal and the findings are to be discussed at NHS conferences in congenital heart disease. The findings may also be transferable to other transition services.
REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
20/LO/0321
Date of REC Opinion
14 Apr 2020
REC opinion
Further Information Favourable Opinion