Lived experiences of care home residents with Parkinson's Disease

  • Research type

    Research Study

  • Full title

    Exploring the culture and lived experiences of people living in care homes who have a Parkinson’s disease diagnosis in Northern Ireland; an institutional ethnography

  • IRAS ID

    348029

  • Contact name

    Gary Mitchell

  • Contact email

    Gary.Mitchell@qub.ac.uk

  • Sponsor organisation

    Queen's University Belfast

  • Duration of Study in the UK

    0 years, 11 months, 25 days

  • Research summary

    This study aims to explore the culture and lived experiences of people living with Parkinson’s disease in care homes across Northern Ireland. Through an Institutional Ethnography (IE) approach, the research will investigate how care practices shape the residents experience. The study will employ semi-structured interviews with residents and their care partners, document analysis of care home residents notes, and focus group interviews with care home staff. By understanding the experiences of residents, NOK, and staff, this research aims to identify factors that influence the quality of care for people with Parkinson’s disease in these settings. The findings will inform future care practices to better support this vulnerable population.

  • REC name

    HSC REC A

  • REC reference

    25/NI/0028

  • Date of REC Opinion

    7 Mar 2025

  • REC opinion

    Further Information Favourable Opinion