Linking mental health data to an integrated health care dashboard
Research type
Research Study
Full title
Linking baseline mental health data to an electronic health care dashboard in young people: A feasibility study
IRAS ID
318708
Contact name
Dasha Nicholls
Contact email
Sponsor organisation
Imperial College London
Clinicaltrials.gov Identifier
173572, RGIT sponsor
Duration of Study in the UK
1 years, 7 months, 29 days
Research summary
This is a feasibility study exploring the acceptability of linking participant data to electronic NHS data through the Whole Systems Integrated Care (WSIC). This application also explores the feasibility and acceptability of linking baseline mental health data of young people in schools obtained from a previous study (with separate ethics approval through Imperial College London) to WSIC, an electronic healthcare dashboard. The WSIC Dashboard is used by health and care professionals and provides an integrated summary and joined-up history of patient's health and social care in Northwest (NW) London. We want to assess the practical feasibility of the data linkage as well as the willingness of young people (YP) to accept linking their data to the dashboard. We will ask questions on demographics, socioeconomic status, self-reported neurodiversity, and digital exclusion prior to asking for WSIC linkage to see which groups of YP accept the data linkage.
To our knowledge, no studies have attempted to link data collected at baseline to WSIC data to explore longer term outcomes in young people in NW London. As such, we will explore methodological and logistical issues which may arise when we attempt the linkage. In order to attempt the linkage to the WSIC database, we will be asking consenting participants from the original cohort for specific identifiers: initials or full name, date of birth, if they are a twin, and their postcode.
We obtained approval to access WSIC for this specific project. We will then explore associations between participants' baseline mental health and longer term outcomes from WSIC such as A&E attendance, CAMHS attendances, prescription of psychotropic medications, and GP attendances for MH diagnoses. We are looking at whether those who score high for mental health problems on screening go on to use health services over the next two years.
REC name
North West - Greater Manchester East Research Ethics Committee
REC reference
24/NW/0318
Date of REC Opinion
30 Oct 2024
REC opinion
Further Information Favourable Opinion