Life and Bladder Cancer Patient Reported Outcomes Survey
Research type
Research Study
Full title
Life and Bladder Cancer: The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes Survey
IRAS ID
219200
Contact name
James W F Catto
Contact email
Sponsor organisation
University of Sheffield
Duration of Study in the UK
2 years, 11 months, 30 days
Research summary
Research Summary:
Bladder cancer is one of the commonest human cancers. Its treatment can affect the physical, psychological and sexual function of a patient, which reduces their overall quality of life. It is important to collect information about the experiences of patients as they reflect outcomes, identify areas of care that need improvement, and how to improve this care. These patient reported outcome measures (PROMs) are important measures of healthcare delivery and identify concerns that matter most to patients. Here we will develop a questionnaire that records these measures in patients with bladder cancer during and after treatment. We will survey all new and existing patients within Yorkshire and the Humber and will compare outcomes across the region, across the spectrum of disease states and treatments, and over the first 12 months since diagnosis. We will use this information to understand outcomes within our population, to identify gaps in care and barriers to care improvement, and to shape clinical care delivery.
Lay summary of study results:
The Life and Bladder Cancer (LABC) study collected Patient Reported Outcome Measures (PROMs) from people affected by bladder cancer. Quality of life and the long-term implications of bladder cancer are poorly understood as information is not gathered as part of routine healthcare. The LABC study collected PROMs via questionnaires designed to capture the impact of bladder cancer and its treatment on general health, quality of life and social lives. Obtaining this information directly from patients is vital to get a person-centred perspective on the consequences of bladder cancer. Additionally, patient reports were linked with treatment details to try and understand what may lead some people to experience more problems than others.REC name
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
REC reference
17/YH/0095
Date of REC Opinion
30 Mar 2017
REC opinion
Favourable Opinion