Life after prostate cancer diagnosis - Version 1
Research type
Research Study
Full title
Life after prostate cancer diagnosis
IRAS ID
159724
Contact name
Adam Glaser
Contact email
Duration of Study in the UK
2 years, 11 months, 31 days
Research summary
Prostate cancer is the commonest cancer in men in the United Kingdom (UK). Its treatment may impact on the quality of life of men and their partners/spouses in many different ways. It is important to measure quality of life outcomes so that services can be tailored to meet their needs.
Our main aims are to:
• describe the health-related quality of life (HRQL) of men with prostate cancer using qualitative (interview) and quantitative (survey) methods;
• explore if and how their HRQL is associated (cross-sectional) or is predicted by (longitudinal) disease, treatment and/or patient characteristics with a view to inform health care policy and service delivery to better meet the needs of such men and their families;
• describe levels of patient empowerment and undertake preliminary exploration of the interaction between empowerment and HRQL.We plan to survey men in England who are at least 12 months beyond diagnosis (~90,500). Men will be identified through the National Cancer Registration Service (NCRS). We have developed a questionnaire which includes validated questions which have proven to be useful in national and international studies.
We plan to survey several different groups of men. One group will be surveyed on two occasions allowing assessment of change over time. A second group, diagnosed in a later calendar year, will be surveyed to assess any changes in the intervening time. We will also conduct detailed interviews with a sample of men who complete the survey (~100) and spouses/partners (~20).
Through the NCRS we plan to link the data with other information (e.g. hospital treatment data) to better understand the responses. All work will observe agreed principles of confidentiality, data protection and research ethics governance.
We will ensure results are available to men and their partners/spouses, the NHS, social care, voluntary sector organisations and other researchers.
REC name
North East - Newcastle & North Tyneside 1 Research Ethics Committee
REC reference
15/NE/0036
Date of REC Opinion
20 Feb 2015
REC opinion
Favourable Opinion