LEAP-MS
Research type
Research Study
Full title
Lifestyle, exercise and activity package for people living with multiple sclerosis (LEAP-MS)
IRAS ID
246247
Contact name
Monica Busse
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
We know that many people with Multiple Sclerosis (MS) require support to remain physically active and often do not receive any or enough support. We know that this is particularly the case for People with Progressive MS (PwPMS) with moderate to severe disability – those who require assistance to mobilise (i.e. using a stick, frame or wheelchair) and/or have other MS related symptoms such as fatigue and difficulties remembering.
In this first phase of the LEAP-MS study we will collect information about the barriers to and facilitators of physical activity that PwPMS experience, their current levels and type of physical activity and their perceptions of the role physical activity plays in managing MS symptoms from both them and their families – or people that support them. This will provide important information about why physical activity might be important for PwPMS, the challenges they face in doing physical activity or accessing it, and ways which they have found to overcome any barriers. We will also collect information from physiotherapists and other health care professionals who specialise in treating people with MS, about their understanding of self-management and their needs for training about using self-management approaches with PwPMS.In Phase 2 of this project we will use the information we have collected from patients, their families and health care professionals to design and evaluate a personalised intervention to facilitate on-going physical activity for People with Progressive MS (PwPMS) and a training package about self-management with PwPMS for physiotherapists.
REC name
Wales REC 6
REC reference
18/WA/0189
Date of REC Opinion
17 May 2018
REC opinion
Favourable Opinion