Kidney BEAM KIDS
Research type
Research Study
Full title
Co-design, development and evaluation of the KIDNEY BEAM-KIDS platform for paediatric kidney transplant recipients: a feasibility study
IRAS ID
318346
Contact name
Pelagia Koufaki
Contact email
Sponsor organisation
Queen Margaret University
Clinicaltrials.gov Identifier
Duration of Study in the UK
2 years, 11 months, 23 days
Research summary
Children and young people (CYP) with chronic kidney disease (CKD) say that physical activity, school, social activities and tiredness are the main issues they want to improve. Kidney-BEAM, a digital health platform designed for adults with CKD, provides a combination of live and on-demand exercise classes to encourage physical activity and movement but is currently not available to CYP with CKD. Therefore, we will work with CYP with CKD, parents/carers and healthcare professionals to find out if we could develop a CYP-relatedelevant version (Kidney BEAM-KIDS) to encourage exercise options that are enjoyable, safe and sustainable. In this project, CYP who have received a KT will be invited by their local clinical teams to try out Kidney BEAM-KIDS; this will include exercise-based classes delivered in age-appropriate groups where CYP will be able to get peer support. Kidney BEAM-KIDS will include features to help motivation such as badges and celebrations when reaching targets. The CYP will be asked to participate in discussions and complete several questionnaires at three time-points over 12 months to explore how they feel about themselves and aspects of their lives such as friendships and school, how physically active they are, their preferred types of foods, activities they do, and their health. This will help us a) understand how acceptable Kidney BEAM-KIDS is to CYP, b) determine whether it needs any changes/improvements, and c) identify key issues around how best to gather data and answer research questions about physical activity benefits in CYP with CKD.
REC name
South East Scotland REC 02
REC reference
22/SS/0111
Date of REC Opinion
31 Jan 2023
REC opinion
Further Information Favourable Opinion