IRIS study
Research type
Research Study
Full title
Illness narratives of young women: Impact of Inflammatory Bowel Disease on the relationships, intimacy and sexuality
IRAS ID
243661
Contact name
Christine Norton
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Inflammatory bowel disease is a chronic untreatable condition that is represented by Crohn’s Disease and Ulcerative Colitis. Majority of the patients are diagnosed during childhood or before the age of 25. The main symptoms are abdominal cramping, weight loss and bloody diarrhoea that follow a remission, relapse pattern. Treatment is mainly addressing the symptoms and has significant side effects. Due to the severity of the symptoms patients also face a psychological and emotional burden of the disease that contributes to a lower quality of life. Qualitative evidence related to the impact of disease on young adults’ life is scarce.
In this study we aim to identify what is the impact of Inflammatory bowel disease on relationships, intimacy and sexuality of young women. The outcome of the study is to understand the issues concerning the young women living with IBD
We will interview face to face and via internet 40 young women aged 16-24 diagnosed with IBD for at least 18 months.Study participants will be recruited at Oxford University Hospitals Foundation Trusts NHS site and via Crohn's and Colitis UK site.
This is part of a PhD project.REC name
East of Scotland Research Ethics Service REC 2
REC reference
18/ES/0139
Date of REC Opinion
4 Dec 2018
REC opinion
Further Information Favourable Opinion