Investigating people's perception and experiences of nutritional care
Research type
Research Study
Full title
Investigating people's perceptions and experiences of nutritional care in palliative oncology. (IPEN) A qualitative study.
IRAS ID
347100
Contact name
Barry Laird
Contact email
Sponsor organisation
N/A
Clinicaltrials.gov Identifier
101057043, Horizon Europe ; 10, 047, 799, Innovate UK
Duration of Study in the UK
0 years, 11 months, 27 days
Research summary
People with a diagnosis of cancer, particularly advanced cancer, can present with significant malnutrition. The consequences of malnutrition in this population can be detrimental. Access to nutritional care can vary greatly but for those who receive nutritional care this can help to address nutrition impact symptoms, relieve patient and caregiver distress and help to improve quality of life.
There is limited research investigating whether nutritional care needs are being met from a physical, psychological and social perspective, how nutritional care should be targeted towards patients and/or their caregivers and who is best placed to deliver nutritional care for advanced cancer patients.
The aim of this study is to explore the experiences of people with advanced cancer and primary caregivers of nutritional care in the community/out-patient setting, to help inform future patient care.
Research within healthcare has found qualitative methods using semi-structured interviews to be a useful research method for for capturing in-depth living experiences. By including people with advanced cancer and primary caregivers will give a different perspectives on nutritional care in those with advanced cancer.
Each participant will be interviewed once, using a semi-structured questionnaire with open ended questions. This will allow participants to express their views and experiences openly. It is anticipated interviews will last from 30-90 minutes. Interviews will be audio recorded with field notes taken. The interviews will be transcribed and analysed initially on a case by case basis.
This study will be part of a PhD thesis and will be disseminated to the wider academic community through publications within peer reviewed journals.
REC name
North West - Greater Manchester West Research Ethics Committee
REC reference
24/NW/0337
Date of REC Opinion
8 Nov 2024
REC opinion
Unfavourable Opinion