Inherited Cancer Early Diagnosis Study (ICED)

  • Research type

    Research Study

  • Full title

    Inherited Cancer Early Diagnosis (ICED) Study. Liquid biopsy screening for early diagnosis of cancers in patients with cancer-predisposition syndromes

  • IRAS ID

    304173

  • Contact name

    Angela George

  • Contact email

    angela.george@rmh.nhs.uk

  • Sponsor organisation

    The Royal Marsden NHS Foundation Trust

  • Duration of Study in the UK

    2 years, 0 months, 1 days

  • Research summary

    Cancer predisposition syndromes account for at least 10% of all adult cancers worldwide. There are more than 50 hereditary cancer-predisposition syndromes and for most of these conditions there are established surveillance guidelines which imply frequent clinical, laboratory and radiological studies. There is a real need for a quicker and easier screening tool which could diagnose a cancer in this population sooner than clinical or radiological signs.
    The ICED study aims to identify a novel blood and/or urine-based biomarker which will detect cancer in patients who have a very high risk of developing a tumour during their lifetime due to their underlying genetic condition. These patients, diagnosed with Li Fraumeni, Lynch, Cowden or Peutz-Jeghers syndromes will be enrolled from specialist Cancer Genetics clinics or specialist gastrointestinal service within our hospital.

    This study will enrol patients over 20 years old, carriers of a pathogenic genetic variant, who haven’t been diagnosed with a cancer in their past and are under routine surveillance. Patients will undergo sequential blood and urine tests during a period of 12 months. After collection, their samples will be analysed in the Molecular Pathology centre where genetic and epigenetic analysis will be done.

  • REC name

    London - Fulham Research Ethics Committee

  • REC reference

    22/PR/0572

  • Date of REC Opinion

    28 Jun 2022

  • REC opinion

    Further Information Favourable Opinion