INfLUENCE-HD
Research type
Research Study
Full title
INfLUENCE-HD: Influencing Huntington's disease monitoring with remote assessments and biomarkers
IRAS ID
323937
Contact name
Lauren Byrne
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2025/08/17, UCL Data Protection Registration number; 183580, EDGE (Sponsor) number
Duration of Study in the UK
1 years, 2 months, 29 days
Research summary
INfLUENCE:HD is the first comprehensive observational research program that incorporates a multi-national, longitudinal, investigation of Huntington’s Disease (HD) with a major focus on Juvenile HD (JHD). This study aims to validate blood based biomarkers and explore other peripheral biosamples for the identification of novel biomarkers with potential for remote quantification.
This has the potential to transform disease monitoring, prognosis and therapeutic development within HD and JHD, but also within Neurology specialist care across the spectrum of many neurological diseases.REC name
East of England - Cambridge South Research Ethics Committee
REC reference
26/EE/0131
Date of REC Opinion
21 May 2026
REC opinion
Further Information Favourable Opinion