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Research type
Research Study
Full title
Managing Hearing loss in Enlarged Vestibular Aqueduct: family experiences and views on AI clinical decision tools.
IRAS ID
291244
Contact name
Iain Bruce
Contact email
Sponsor organisation
University of Manchester
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
Enlarged Vestibular Aqueduct (EVA) is a common congenital inner ear abnormality associated with childhood hearing loss (HL). The HL in EVA is very different depending on the individual. As a consequence, it is not yet clear how to best support children with EVA. For instance: what lifestyle restrictions need to take place? How regularly hearing should be monitored? These are the questions that parents of children with EVA would like to know answers to. To address these uncertainties, a study is currently conducted where a computer programme is developed to help predict the onset, progression and severity of hearing loss in children with EVA.
In this new proposed study, we will have a conversation with parents of children with EVA, either by telephone or a video call, to find out their views about how they manage family life with EVA and what they think about using a computer programme to help doctors in planning treatments for their child.
Participants for this study will be identified by a doctor who is working on the computer programme mentioned before. Once identified, parents will be consented and interviewed by a qualitative researcher.
The results of this research will help health care providers to learn about the challenges of living with EVA and inform their practices to support these families. Additionally, it will help in designing and implementing the diagnostic computer programme so that it is of most use to patients and their families.
REC name
London - Brent Research Ethics Committee
REC reference
21/PR/0091
Date of REC Opinion
8 Mar 2021
REC opinion
Further Information Favourable Opinion