Incorporating patient reflections to improve cancer diagnosis

  • Research type

    Research Study

  • Full title

    Incorporating patient reflections into learning for quality improvement in cancer diagnosis in primary care

  • IRAS ID

    342563

  • Contact name

    Una Macleod

  • Contact email

    Una.Macleod@hyms.ac.uk

  • Sponsor organisation

    University of Hull

  • Duration of Study in the UK

    0 years, 7 months, 14 days

  • Research summary

    Significant Event Audit (SEA) (sometimes also referred to as a ‘Learning Event Analysis’ (LEA)) is a method that clinical teams use to try and improve the quality of care that they provide to their patients. It can be used to reflect on any area of a patients care, whether that be positive or negative.

    SEA is often used within primary care to reflect on cancer diagnosis, particularly if there have been issues surrounding the diagnosis. For example, diagnostic delay, or if the patient was diagnosed via an emergency pathway, such as attending A&E, which then results in a cancer diagnosis.

    Significant event audit (SEA) is a valuable learning tool, but currently it only provides information that hinges on the clinical perspective. Our study is about giving patients and families a voice within this process. To help us achieve this, we have co-designed a template with members of the public who have personal experience of cancer diagnosis. We will then pilot this template in a GP practice, the results of which will then feed into a larger feasibility study. This template will enable patients and their families to reflect on their pathway to cancer diagnosis. The information we capture will then feed into the significant event audit process, to help ensure that the experiences of patients and families are considered alongside clinical perspectives.

    Therefore, the primary aim of this study is to develop a template specifically designed to allow patients and their families to reflect on their pathway to cancer diagnosis, and to evaluate how adding the patient reflections can facilitate quality improvement in primary care practice.

  • REC name

    East Midlands - Nottingham 2 Research Ethics Committee

  • REC reference

    24/EM/0160

  • Date of REC Opinion

    1 Oct 2024

  • REC opinion

    Further Information Favourable Opinion