INCLUDE: Using Lived Experience to Improve Mental Health Diagnosis V.1
Research type
Research Study
Full title
Perspectives on the INternational CLassification of Diseases (11th revision); Using lived experience to improve mental health Diagnosis in NHS England: INCLUDE Study
IRAS ID
216352
Contact name
Corinna Hackmann
Contact email
Sponsor organisation
Norfolk and Suffolk NHS Foundation Trust
Duration of Study in the UK
0 years, 6 months, 30 days
Research summary
The focus of this study is not about what it is like to have a mental disorder, but instead the diagnostic experience. Some people find diagnoses helpful, but some find them upsetting and harmful. Research is therefore needed to improve diagnostic processes. It has been suggested that patient experiences and outcomes may be affected by the diagnostic tools used, including diagnostic criteria, labels and language. In the NHS, the tool used by doctors to help diagnose people is a guidebook called the International Classification of Diseases (ICD). A new version of this guide is due to be released in 2018. This project will use focus groups to ask people who use mental health services and diagnosing doctors in those services what they think about the labels and language in the new guide. We can then suggest changes before the guide is published. We hope that this research will improve mental health diagnosis. The research will take place in Norfolk and Suffolk and span seven months.
REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
16/WM/0479
Date of REC Opinion
22 Dec 2016
REC opinion
Further Information Favourable Opinion