In practice: supporting self-management in renal patients on dialysis
Research type
Research Study
Full title
Engaging patients and professionals in the shift from research to practice. How can a multidimensional self-management behaviour scale be used to support renal patients on haemodialysis in the UK?
IRAS ID
292773
Contact name
Helen Munro Wild
Contact email
Sponsor organisation
University of Hertfordshire
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
This study builds on the development of a self-management behaviour scale for patients on haemodialysis (SM1). The current study will examine the utility of the scale and how it might be implemented in clinical practice by renal services. By engaging with professional staff and patients, we will explore potential use of the scale; it’s acceptability to staff and patients and potential barriers and facilitators to implementation. This qualitative work will examine how use in the treatment context might lead to direct patient benefit in the healthcare setting as well as outside it.
The study consists of three phases:
Phase 1:
Conduct a critical scoping review of existing programmes, interventions and initiatives that could support self-management behaviours.
Phase 2:
2a. Convene a stakeholder group of health professionals and third sector partners, and research-engaged dialysis and/or transplant patients/or other patients with similar chronic condition. This group will meet twice to review the findings from the previous study and review the qualitative data generated from the current study (phases 2b-2c).
2b. Conduct qualitative interviews and/or small focus groups with staff and patients from 4 renal centres. The final, validated scale from SM1 will be considered in terms of how it might be used in clinical and research settings.
2c. Conduct further interviews with patients that participated in the previous study asking about their experiences of completing the scale and study participation.
2d. Findings generated from 2b and 2c will inform discussions in the second stakeholder group meeting. The output from this meeting will draw conclusions about current patient and staff engagement in self-management in standard care. It will provide context and action points for development of an implementation strategy and guidance for clinical/research use.
Phase 3:
Development of an implementation strategy including guidance for clinical and research use.REC name
London - Brighton & Sussex Research Ethics Committee
REC reference
21/PR/0144
Date of REC Opinion
13 May 2021
REC opinion
Further Information Favourable Opinion