Implementing a service to support cancer patients and their children
Research type
Research Study
Full title
Implementing a service from diagnosis to recovery to support cancer patients and their children
IRAS ID
247088
Contact name
June Allen
Contact email
Sponsor organisation
Guy's & St Thomas' Foundation NHS Trust
Duration of Study in the UK
0 years, 10 months, 2 days
Research summary
Cancer patients with parental responsibilities are unsupported in the context of their family needs, and their children are at high-risk of developing negative psychosocial problems. Cancer nurses report a lack of education, confidence,\nand resources to provide this family support. The aim of this project is to pilot a new service that supports patients and their children during both their hospital care, and recovery once discharged. Patients who are being treated in nine tumour clinics will be recruited by nurses onto the project. The only criteria is the patient must be responsible for caring for children aged between 3-16. During initial consultation the nurses and patients will create a toolkit that supports their family’s needs using a virtual shopping online platform. The toolkit will be delivered to the patient’s house. The patient will provide feedback after two periods post diagnosis; at eight weeks and at six months through both interviews and questionnaire. Feedback from healthcare professionals at the end of the project will be completed via online questionnaires. The main outcomes are improved mental well-being for patients and their children, and increased staff skills.
REC name
North of Scotland Research Ethics Committee 1
REC reference
18/NS/0119
Date of REC Opinion
13 Nov 2018
REC opinion
Further Information Favourable Opinion