Impact of Visual Impairment after Stroke II
Research type
Research Study
Full title
Impact of visual impairment after stroke II: Measuring and exploring vision-related quality of life.
IRAS ID
271947
Contact name
Lauren Hepworth
Contact email
Sponsor organisation
University of Liverpool
Duration of Study in the UK
1 years, 10 months, 14 days
Research summary
Measuring and exploring the impact on vision-related quality of life for stroke survivors with post-stroke visual problems.
WHY?
Nearly three-quarters of stroke survivors have a visual problem. Visual problems can affect many everyday activities and result in loss of independence. It is important to measure the impact of stroke-related vision problems on stroke survivor’s quality of life.
WHAT?
The aim is to test a newly developed questionnaire for use in clinical appointments and research. It has 15 questions for measuring impact on quality of life caused by stroke-related vision problems.
HOW?
The questionnaire involved stroke survivors and clinicians at every stage of development. It was designed for stroke survivors with visual problems; is short and quick to fill in. This study will ask stroke survivors to fill in the questionnaire; aiming for 243 to be fully completed. They will also be asked to fill in a general health and a general vision questionnaire to compare the different questionnaires. To follow and record changes in the vision problems, those who are recovering will be asked to fill in the questionnaires again at routine NHS follow-up visits. To assess if questionnaire answers stay the same over time where there is no change in the vision problem, people with a stable vision problem will be asked to fill in the questionnaires again at one and three months and the answers compared.
Around 60 who have filled in questionnaires will be interviewed to ask questions about: 1) how vision problems affect everyday life after a stroke, and 2) how easy it is to fill in the questionnaire.
The questionnaire will also be tested by asking family members to fill it in independently, and their answers compared. The aim being to evaluate proxy completion in situations where the stroke survivor may not be able to complete a questionnaire themselves.REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
20/YH/0009
Date of REC Opinion
28 Feb 2020
REC opinion
Further Information Favourable Opinion