Impact of visual difficulties on quality of life in monocular children
Research type
Research Study
Full title
Exploring the prevalence of visual difficulties and their impact on quality of life in children with monocular vision following enucleation due to Retinoblastoma
IRAS ID
224979
Contact name
Zishan Naeem
Contact email
Duration of Study in the UK
0 years, 4 months, 0 days
Research summary
Retinoblastoma is a rare form of malignant childhood eye cancer and the primary aim of treatment is to preserve the life of the child followed by salvaging the affected eye(s)and preserving the vision. Due to advanced disease, the affected eye cannot always be salvaged, as a means of preserving their life, and so affected children undergo enucleation (eye removal)and are left with the vision from one eye only – this is called monocular vision. There is an assumption that children tend to adapt relatively easily to having monocular vision. However, feedback given by children and parents during their review appointments has shown that some children have experienced visual difficulties after their enucleation. Some parents have expressed that they would like to receive more information about the visual difficulties and would like to receive coping strategies for such visual problems. The study therefore aims to understand the possible visual difficulties in children with monocular vision following enucleation due to retinoblastoma. The findings will be used to provide information to children and parents (service users). The information will be used to develop recommendations and coping strategies to manage visual difficulties which occur after enucleation.
REC name
South West - Central Bristol Research Ethics Committee
REC reference
17/SW/0188
Date of REC Opinion
11 Sep 2017
REC opinion
Further Information Favourable Opinion