Impact of Illness Representations on FH patients

  • Research type

    Research Study

  • Full title

    The impact of Illness Representations on illness management in patients with Familial Hypercholesterolaemia (FH)

  • IRAS ID

    187703

  • Contact name

    Handrean Soran

  • Contact email

    handrean.soran@mft.nhs.uk

  • Sponsor organisation

    Central Manchester University Hospitals NHS Foundation Trust

  • Duration of Study in the UK

    0 years, 6 months, 15 days

  • Research summary

    Familial Hypercholesterolaemia (FH) is a genetic condition and affected patients have high circulating levels of blood cholesterol. If untreated the condition is known to be associated with early onset heart disease. Reducing cholesterol levels in FH patients is the mainstay of FH treatment plans and cholesterol lowering medications are routinely prescribed to FH patients. Despite the health benefits of taking cholesterol lowering medications, it is known that patient compliance is not optimal. This may be related to the patients' perception of their medical condition that in turn influences their behaviour - one of the models describing this mode of behaviour is known as the common sense model of illness representations. In this study we explore patient behaviour in relation to their diagnosed condition. This is part of an international study named 'FH 10 countries study' and our study represents the FH cohort in the UK.

  • REC name

    Wales REC 7

  • REC reference

    15/WA/0446

  • Date of REC Opinion

    3 Dec 2015

  • REC opinion

    Favourable Opinion