Identifying patients’ subjective illness narratives for fibromyalgia
Research type
Research Study
Full title
Identifying patients’ subjective illness narratives for fibromyalgia – a focus group study
IRAS ID
266140
Contact name
Cosima Locher
Contact email
Sponsor organisation
University of Plymouth - Sponsor Representative
Duration of Study in the UK
1 years, 3 months, 1 days
Research summary
Background: To understand more about how patients with fibromyalgia (FMS) are expressing their subjective illness narratives after concluding the ‘body reprogramming’ course, we plan to explore the narratives they apply in a focus group study. As the patients participated in the ‘body reprogramming’ earlier, the narratives learned in that intervention will probably be included in the narratives presented in the focus groups. We are especially interested in the subjective experience of change and the question of whether patients accept and use the narrative presented in the ‘body reprogramming’ course or whether they have different / slightly adapted narratives for their illness.
Methods: Focus groups will be used to collect qualitative data. We are especially interested in descriptions of subjective illness narratives of FMS. This includes but is not restricted to: the (illness) identity, i.e. the symptoms and the ‘diagnostic label’ associated with the illness, the timeline of the illness, the causes, the consequences, and the curability/controllability of the illness. A total of four focus groups will be held.
REC name
London - Riverside Research Ethics Committee
REC reference
19/LO/1296
Date of REC Opinion
25 Jul 2019
REC opinion
Favourable Opinion