Identifying needs of patients with interstitial lung disease
Research type
Research Study
Full title
What do people living with Interstitial Lung Disease (ILD) and carers need and want in relation to improving their quality of life
IRAS ID
231896
Contact name
Gail Miles
Contact email
Sponsor organisation
The Rotherham NHS Foundation Trust
Duration of Study in the UK
0 years, 2 months, 29 days
Research summary
The purpose of this study is to understand the impact that interstitial lung disease has on patients and their carers in order that we can improve the service we offer and share this information with our colleagues in other areas.\nThe study will involve speaking to patients who attend a specific patient support group and/or clinics at the Rotherham Specialist community respiratory unit known as BreathingSpace about the purpose and aim of this survey and ask for patients/carers to tell us if they are interested in being interviewed.\nThe interviews will take place either in BreathingSpace or the patient’s own home at their choice. They will all take place with myself and be voice recorded. The interviews will be anonymised, transcribed and analysed by myself. \nOnce analysed I will produce a report which will be available to participants and will be submitted to conferences and submitted for publication.
REC name
South Central - Oxford A Research Ethics Committee
REC reference
17/SC/0668
Date of REC Opinion
17 Jan 2018
REC opinion
Further Information Favourable Opinion