IARE II: needs & preferences of recently hospitalised older people
Research type
Research Study
Full title
International Access, Rights and Empowerment (IARE) II: An international study of the needs, preferences and healthcare use over time of older people who have recently attended hospital.
IRAS ID
214241
Contact name
Irene J Higginson
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 11 months, 30 days
Research summary
In this research study we want to understand the symptoms, preferences, and healthcare use of frail older people who have recently had an unplanned hospital attendance.
This is important because more people are living to an older age, and are becoming frail. More people are living, and dying with chronic illnesses. Whilst many older people cope very well, use of acute health services such as hospital is increasing. To adapt care to what is important to the growing number of frail older people, we need to understand peoples’ mental and physical healthcare needs, healthcare use, and also their preferences and wishes about healthcare.
Patients for this international study will be identified from hospitals in London, Dublin and New York.
The study has two parts. In Part 1 we will ask frail older people (aged over 65 and measured as frail according to a widely used checklist) and their carers to provide written consent and then complete a series of questionnaires about their health problems and concerns, preferences, and use of healthcare services. There will be three main questionnaires over a 6 month period and each questionnaire will take 30-60 minutes. We will also interview some of the participants in greater depth to explore their preferences, experiences of illness and care and how these change. Each interview will take about an hour.
Part 2 focuses on experiences at the end of life by asking bereaved carers of people aged over 65 who have died in hospital 4-10 months previously to complete a postal survey. The survey takes about one hour to complete and investigates the older person’s experiences, and the level of grief experienced by the carer.
Patient and public representatives have advised on the development of this study from the beginning, and an advisory group will oversee the study throughout.REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
16/LO/2048
Date of REC Opinion
10 Jan 2017
REC opinion
Further Information Favourable Opinion