HRQoL in Adolescents and Young Adults with Cancer
Research type
Research Study
Full title
An investigation into the use of the EORTC Core instrument and the possible need of a module for the assessment of Health Related Quality of Life (HRQoL) in Adolescents and Young Adults (AYA) with cancer.
IRAS ID
173707
Contact name
Anne-Sophie Darlington
Contact email
Sponsor organisation
University of Southampton
Duration of Study in the UK
1 years, 2 months, 1 days
Research summary
This study addresses the specific Health-related Quality of Life (HRQoL) concerns facing Adolescents and Young Adults (AYA) with cancer with a particular focus on the suitability of an adult generic cancer measure developed by the European Organisation for Research and Treatment of Cancer (EORTC QLQ-C30). The study will include a literature review, interviews with patients and health care professionals and consultation with experts. The first phase of the research is largely exploratory to gain insight into the important issues for AYA. A second stage of the research will involve reviewing these important issues as well as rating the relevance and importance of the EORTC QLQ-C30 items and will include a separate sample of AYA participants as well as older adults in order to uncover differences. The results of this study will be used to determine the optimal method for assessing HRQoL in AYA and whether the EORTC QLQ-C30 is appropriate for use in its current format or if it needs adapting. In addition, other measures might be considered more suitable or the results might provide a rationale for the development of a new module to supplement the EORTC QLQ-C30 and to include all relevant and specific HRQoL concerns of this age group.
REC name
South Central - Oxford C Research Ethics Committee
REC reference
15/SC/0170
Date of REC Opinion
10 Apr 2015
REC opinion
Further Information Favourable Opinion