How people manage their health conditions: A survey study
Research type
Research Study
Full title
How people manage their health conditions: A survey study
IRAS ID
235922
Contact name
Bethan Jones
Contact email
Sponsor organisation
University of the West of England
Duration of Study in the UK
1 years, 4 months, 1 days
Research summary
Research indicates that there are a variety of factors that can impact how engaged someone is managing their health, and one of these is a concept called patient activation (Hibbard et al., 2004). It is defined as how willing and able someone is to take an active role in dealing with their health (Hibbard and Greene, 2013).
Higher levels of activation are associated with fewer emergency hospital admissions, fewer days as an inpatient and lower healthcare costs (Hibbard et al., 2015). Therefore, there is a value in understanding activation to reduce strain on the NHS. For individuals, people who are more activated are also more likely to stick to their treatment schedules,and have better outcomes overall (McCusker et al., 2016).
The study aims are to understand patient activation scores in a cross-section of people with inflammatory arthritis, and to understand changes to patient activation over time. The study also aims to examine the associations between patient activation and other related constructs and demographic characteristics.
Participants who are patients living with inflammatory arthritis, accessing treatment and care in NHS rheumatology services, and who meet the sampling requirements, will be invited to participate in the study. This will involve participants completing questionnaires that measure patient activation and other related concepts, as well as demographic information, by. Asking participants to complete the questionnaires again between approximately 9 months later will help to understand changes to patient activation over time.
This study (funded with a PhD scholarship from Arthritis Research UK) will contribute to the development of a framework to describe factors involved in patient activation in inflammatory arthritis.
REC name
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
REC reference
18/YH/0227
Date of REC Opinion
6 Jun 2018
REC opinion
Favourable Opinion