How do parents successfully engage with health information? (ver.1)
Research type
Research Study
Full title
How do parents of children with long-term disability successfully engage with health related information?
IRAS ID
225211
Contact name
Jane Morris
Contact email
Sponsor organisation
University of Brighton
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Driven by both national and international policy, children with long-term disabilities and their families are being increasingly recognised as key collaborators in the planning and delivery of their care. It is the responsibility of paediatric health professionals to ensure that parents are empowered to take on this additional role; however, there is little evidence regarding how this is most successfully achieved.
In the proposed study, a sample of at least 20 parents who care for children with long-term disabilities will be interviewed to explore their experiences of accessing and making use of health-related information about their child. Using a grounded theory approach, data collected will be used to generate theory about how parents might be better supported to successfully engage with health-related information.
Parents will be recruited from a single NHS trust and interviews will be conducted, in a location chosen by the participants, by an experienced/skilled paediatric health professional.
REC name
East Midlands - Nottingham 1 Research Ethics Committee
REC reference
17/EM/0184
Date of REC Opinion
12 May 2017
REC opinion
Further Information Favourable Opinion