How do Adolescents with Cystic Fibrosis Experience Segregation?
Research type
Research Study
Full title
How do adolescents with Cystic Fibrosis experience segregation?
IRAS ID
170873
Contact name
Emma Elizabeth Vines
Contact email
Duration of Study in the UK
1 years, 5 months, 3 days
Research summary
Minimising the spread of infections is important to help people’s with Cystic Fibrosis (CF) stay healthy. Segregation guidelines were introduced to stop the spread of harmful infections between people with CF (The Cystic Fibrosis Trust, 2004; Sabadosa, 2013). In practice, this means that people with CF are treated in individual treatment rooms, and are advised not to meet face to face with others who have CF in and outside of hospital. CF Segregation guidelines have support from medical research, but not much is known about what segregation is like for young people with CF.
Research in other conditions that use segregation to reduce infection has found many associated challenges and difficulties of segregation for patients. Strategies and means to support patients who are segregated in other conditions, such as peer contact, aren’t always possible for people with CF, yet there are currently few alternative means of support available alongside segregation to people with CF.
This study aims to recruit 12 young people aged 12-19 from the paediatric CF clinic at Addenbrooke’s Hospital, and the paediatric and adult CF service and the Norfolk and Norwich University Hospital. Participants will complete an interview around their understanding, views and experiences of the segregation guidelines. The researcher will look for any patterns or themes in what participants say.
By exploring young people’s experiences, it is hoped that the study will give a better understanding of what segregation is like for young people with CF. This information could help inform future improvements in CF care and services.References
Cystic Fibrosis Trust (2004). Pseudomonas aeruginosa infection in people with cystic fibrosis: suggestions for prevention and infection control. Report of the UK cystic fibrosis trust infection control group, 2nd Edition. Kent: Bromley.
Sabadosa, K. (2013). Implementing infection prevention and control. Pediatric Pulmonology, 48, 187–188.REC name
London - City & East Research Ethics Committee
REC reference
15/LO/0994
Date of REC Opinion
5 Jun 2015
REC opinion
Favourable Opinion