How activated are people to manage their health after stroke?
Research type
Research Study
Full title
How activated are people to manage their health after stroke? An exploratory study using the Patient Activation Measure (PAM)
IRAS ID
253931
Contact name
Kate Hackett
Contact email
Sponsor organisation
Newcastle Upon Tyne Hospitals
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Stroke is one of the leading causes of disability in the UK and can have a big impact on a person’s independence and quality of life. It is necessary to carry out research to try and find new or better ways to help people recover after stroke. ‘Patient activation’ is a term used to describes; the knowledge, skills and confidence a person has to manage their own health and health care’. Patient activation in simple terms is: ‘engagement in self-management behaviour’. It is important that people adopt positive self-management behaviours after stroke, to keep them well and help reduce further strokes. Previous studies have looked at self-management in depth, but more research is still needed to look at the associated complexities.
This study will look at how engaged people are after stroke, using a questionnaire called the Patient Activation Measure (PAM). The PAM has been extensively tested, and can measure self-management behaviour, effectively in many people with long term conditions. The study aims to identify how engaged people are in managing their own health after stroke, and explore associated factors. For example: quality of life or fatigue.
To do this we ask participants the PAM and eight other questionnaires (see A13) to complete at three different time points. Eligible Participants will be over 18 years of age, had a stroke in the last fifteen days and be able to read and write in English. We will ask every eligible participant to take part and hope to recruit as many as possible (minimum 30), over a six-month period from Newcastle Community Stroke Service. The study is expected to last twelve months. It is anticipated that the findings from this study will help to plan future studies, looking at interventions to promote positive self-management behaviours after stroke, using the PAM.
REC name
East of England - Cambridge South Research Ethics Committee
REC reference
19/EE/0106
Date of REC Opinion
19 Mar 2019
REC opinion
Further Information Favourable Opinion