Hidradenitis Suppurativa Quality of Life (HiSQOL) questionnaire

• Research type

  Research Study

• Full title

  Validation of the Hidradenitis Suppurativa Quality of Life (HiSQOL) questionnaire

• IRAS ID

  265874

• Contact name

  John Ingram

• Contact email

  IngramJR@cardiff.ac.uk

• Sponsor organisation

  Cardiff University

• Duration of Study in the UK

  2 years, 0 months, 0 days

• Research summary

  Hidradenitis suppurativa (HS) is a chronic inflammatory skin condition that causes inflammatory nodules, abscesses, sinus tracts and in severe cases may lead to scarring. The disease most commonly affects flexural areas in the body (i.e. axillae, groin, and buttocks) having a significant impact on the patient’s quality of life. Having an HS-specific quality of life measurement tool has been recognized as a core outcome domain by the Hidradenitis suppuraTiva cORe outcomes set International Collaboration (HISTORIC) consensus group. The aim of this study is to validate the newly developed hidradenitis suppurativa quality of life (HiSQOL) questionnaire. All adult patients attending the dermatology clinic at Cardiff and Vale UHB at Glamorgan House, University Hospital of Wales (UHW) are potentially eligible to participate in the study. This research shall benefit the patients by enhancing their clinical care and in the long term by including these outcomes in research related to HS treatment.

• REC name

  Wales REC 5

• REC reference

  19/WA/0366

• Date of REC Opinion

  3 Feb 2020

• REC opinion

  Further Information Favourable Opinion