hEARD: help Exploring At-Risk Disengagement Delphi Study
Research type
Research Study
Full title
Development of a user centred care model to improve engagement and outcomes for those at risk of developing psychosis using Delphi methods
IRAS ID
329848
Contact name
Lauren Cox
Contact email
Sponsor organisation
University of Manchester
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
People deemed as at risk of developing psychosis (also known as ARMS - At-Risk Mental State services) often disengage (leave early) from services developed to support them, which can lead to poor health, social and personal outcomes and is poorly understood. This research is part of a three phased set of studies aimed at exploring and addressing service disengagement for ARMS users in order to retain users in services and improve their overall outcomes. This is of relevance and importance, as there are no studies which specifically explore disengagement and how to address this from a service-user perspective.
Information has been collected from service users regarding their reasons for disengaging from such services and opinions on how this could be addressed in clinical practice. The information has been generated into statements for experts (service users, carers and relevant professionals) to vote on their priorities for a user-centred care model (additional to current service delivery) which may keep users engaged, reduce risk of development of psychosis and improve their overall outcomes. Future plans will be to test the model in clinical practice via seeking further funding.
The Delphi study will use three survey rounds for 80 experts to vote on the priorities for the user-centred model and to reach agreement on aspects of the model. There will be a break between each survey, therefore participants would be involved in the study for six months if they completed all surveys. ARMS users and their carers across ARMS services will be recruited across Greater Manchester, Merseyside, the North East and the Midlands. Professionals (clinicians, researchers, policy makers, commissioners) will be recruited via existing professional contact networks and supervisory team networks.
The study is funded by NIHR as part of a Clinical Doctoral Research Fellowship.REC name
South Central - Berkshire B Research Ethics Committee
REC reference
24/SC/0143
Date of REC Opinion
23 May 2024
REC opinion
Further Information Favourable Opinion