HEARD
Research type
Research Study
Full title
HEARD: Exploring the longitudinal Health care Experiences and Attitudes Regarding people with Dementia, carers and professionals
IRAS ID
264204
Contact name
Kate Walters
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2019/07/20 , UCL Data Protection Registration Number
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
There are over 850,000 people living with dementia in the UK currently, with numbers forecast to increase to over 1 million by 2025 and over 2 million by 2051. HEARD will aim to capture the experiences of people with dementia, their carers and their health care professionals regarding the provision and their expectations of care following a diagnosis of dementia. By developing an understanding of current experiences, as well as expectations for improved care, HEARD will describe a foundation for future care following a diagnosis of dementia, that looks broadly across all healthcare settings including both community and hospital care. This will hope to improve quality of life and reduce future crisis situations for people with dementia and their families. In order to do this, qualitative interviews will be done with dementia care ‘triads’, namely the person with dementia, their carer and one of their health care professionals. We will speak to them initially and follow up after 6 months in order to capture elements of their dementia care journey that arise over time. Using a qualitative approach will help explore the current experiences of dementia care following a diagnosis in the NHS today in an in-depth manner from different perspectives that highlights important areas for change as well as good practice in dementia care.
REC name
London - South East Research Ethics Committee
REC reference
20/LO/0006
Date of REC Opinion
24 Feb 2020
REC opinion
Further Information Favourable Opinion