Healthcare transition experiences of young people with IBD
Research type
Research Study
Full title
Exploration of transition experiences of adolescents and young adults with IBD\n
IRAS ID
223577
Contact name
Alison Jackson
Contact email
Sponsor organisation
NHS Greater Glasgow & Clyde
Duration of Study in the UK
1 years, 4 months, 31 days
Research summary
Inflammatory bowel disease (IBD) is a life-long condition. Symptoms can change over time and usually people have periods of good health as well as times when symptoms are active. (Crohn’s and Colitis UK, 2016). Up to 25% of IBD is diagnosed in children and recent reports suggest that occurrence in childhood is rising (Leung et al 2011). Consequently, it has become an important concern for healthcare providers to better understand issues related to the process of transition from child to adult. Existing transition guidance for IBD has predominantly been informed by expert, clinician and parent opinions. Opinions of young people themselves however are missing (Cole et al, 2015). \n\nThe study aims to explore how young people with IBD experience the transfer from child to adult services.\n\n4-10 participants aged 16 years and above with an established diagnosis of IBD will be recruited from NHS Greater Glasgow and Clyde gastroenterology services. The researcher will use semi-structured interviews to allow participants to talk about their experiences during transition. Interviews will take 45-60 minutes and will be recorded to allow for analysis. The study uses a qualitative approach to allow participants to identify and prioritise factors that are important to them and to gain insight into the meaning of their experiences. \n\nIf healthcare professionals have a better understanding of the experiences of young people with IBD as they transfer from paediatric to adult care, services could be designed to meet the needs of the population, thus improving their transition experiences and health outcomes.\n\n\n
REC name
North West - Preston Research Ethics Committee
REC reference
17/NW/0391
Date of REC Opinion
20 Jun 2017
REC opinion
Further Information Favourable Opinion