Health promotion in adults with Down Syndrome: Experiences of carers

• Research type

  Research Study

• Full title

  The implementation of health promotion advice in adults with Down syndrome: views and experiences of support workers and family caregivers.

• IRAS ID

  199022

• Contact name

  J Inchley

• Contact email

  jci2@st-andrews.ac.uk

• Sponsor organisation

  The University of St Andrews

• Clinicaltrials.gov Identifier

  N/A, N/A

• Duration of Study in the UK

  0 years, 5 months, 0 days

• Research summary

  This small-scale qualitative study will explore what health promotion advice is implemented successfully by carers of patients attending the NHS Fife Down Syndrome general health screening clinic. Both paid carers (support workers) and family carers will be interviewed to explore the facilitators and barriers to implementing health promotion advice. Data will be transcribed and analysed using thematic analysis to identify the main challenges faced by carers of adults with Down Syndrome.

• REC name

  North East - Newcastle & North Tyneside 1 Research Ethics Committee

• REC reference

  16/NE/0076

• Date of REC Opinion

  29 Feb 2016

• REC opinion

  Favourable Opinion