HD-YAS 2.0

• Research type

  Research Study

• Full title

  Huntington’s Disease Young Adult Study 2.0

• IRAS ID

  303499

• Contact name

  Sarah Tabrizi

• Contact email

  s.tabrizi@ucl.ac.uk

• Sponsor organisation

  University College London

• Clinicaltrials.gov Identifier

  Z6364106/2016/06/74, UCL Data Protection Registration number; 16/LO/1323, HD-YAS V1.0

• Duration of Study in the UK

  4 years, 0 months, 1 days

• Research summary

  The purpose of this research study is to map the progression of the earliest HD related changes that can be found in young gene-positive adults and to identify the optimal time at which therapeutic intervention could be given to prevent HD related changes and decline. We will do this by carrying out a number of assessments, including cognitive, behavioural, psychiatric and biofluid assessments and neuroimaging at two time points. This will be added to the data from the HD-YAS v1.0 study to create a model of early HD related changes in young gene-positive adults over time.
  

• REC name

  London - Queen Square Research Ethics Committee

• REC reference

  22/LO/0058

• Date of REC Opinion

  1 Mar 2022

• REC opinion

  Further Information Favourable Opinion