HAEFiT v1.0 - Hereditary Angioedema and Fitness Tracking
Research type
Research Study
Full title
A prospective cohort study of adults with hereditary angioedema to assess the feasibility of using a wearable fitness tracking device to investigate relationships between attack frequency and physical activity.
IRAS ID
251660
Contact name
Emily Carne
Contact email
Sponsor organisation
Cardiff and Vale University Local Health Board
Duration of Study in the UK
2 years, 11 months, 31 days
Research summary
HAEFiT aims to explore the feasibility of using fitness tracking devices to assess the relationship between angioedema attack frequency and measurements made by a fitness tracking device of steps taken per day and exercise intensity. We hypothesise that physical activity may act as a trigger for angioedema attacks, but also may improve disease control . We also hypothesise that there is a relationship between sleep quality and angioedema attack frequency , in that poor sleep quality may be associated with increased frequency due to resulting fatigue or underlying stress . Objective measurement of these effects may be a more reliable and accurate way to assess symptoms and disease impact than conventional patient-reported measures.
REC name
Wales REC 5
REC reference
20/WA/0215
Date of REC Opinion
25 Aug 2020
REC opinion
Favourable Opinion