Gynae Narratives
Research type
Research Study
Full title
Gynae Cancer Narratives Project
IRAS ID
275116
Contact name
Lisa A Ashmore
Contact email
Sponsor organisation
Lancaster University
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
Summary of Research
Women undergoing radiotherapy for gynaecological cancer can experience psychosocial and physical symptoms that impact, in particular, on their sexuality and mental health. Over half of women treated with radiotherapy for gynaecological cancer still experience decreased sexual function 14 weeks after the completion of their treatment. A lot worry about the status of their sex life and, whilst the literature acknowledges that support is necessary for all women following treatment, the focus is frequently on developing technological treatment techniques, rather than on information and support.
This project will explore how patients experience radiotherapy for gynaecological cancer using journals from initial consent for treatment to six months after treatment has finished. Specifically, this will focus on:
- coping with radiotherapy
- expectations of radiotherapy
- levels of support needed
The objectives of the project are to:
- Better understand the practical demands placed upon patients receiving radiotherapy.
- Explore how individuals mobilise resources to cope with demands of gynae-radiotherapy.
- Develop a range of resources for use by patients and practitioners, including a searchable web-site and a patient support tool containing an anthology of narratives.Summary of Results
This study looked at how women experience radiotherapy treatment for gynaecological cancers, such as cervical, ovarian, and uterine cancer. Past research has shown that women often feel isolated, misunderstood, and unsupported during and after treatment. Many feel that the side effects are seen as something they just have to put up with, rather than being issues that deserve proper attention and care. To better understand these experiences, researchers collected personal stories from 34 women in the UK who had received radiotherapy for gynaecological cancer—some as recently as a few months ago, and others up to 25 years earlier. The women shared their experiences through written journals, audio recordings, or videos. One clear theme emerged: many women felt they were not being truly listened to. The stories highlighted seven important areas where better conversations and support are needed—about the treatment itself, daily life, sexual wellbeing, long-term side effects, dignity, communication with healthcare providers, and dealing with trauma. This research shows that women’s voices must be heard more clearly in their care. Better listening and patient-centred support are essential to improve the experience of radiotherapy and recovery.REC name
East of Scotland Research Ethics Service REC 1
REC reference
20/ES/0008
Date of REC Opinion
22 Jan 2020
REC opinion
Favourable Opinion