Going Digital Study - Phase 1
Research type
Research Study
Full title
Going Digital - The implementation of EPIC electronic patient records (EPR) in a paediatric tertiary hospital: Understanding the benefits and challenges for patients, parents and staff and the practical, ethical and legal implications
IRAS ID
252222
Contact name
Philippa Sipanoun
Contact email
Sponsor organisation
UCL GOS ICH
Clinicaltrials.gov Identifier
ID: 13707/001, UCL Research Ethics Committee ID for Phase 1 (staff workshops)
Duration of Study in the UK
0 years, 2 months, 1 days
Research summary
Great Ormond Street Hospital (GOSH) operates in a global healthcare environment, with growing pressure to provide quality care whilst reducing costs. The deployment of an electronic patient records (EPR) system is critical and core towards GOSH being a digital hospital. Evidence suggests that EPRs have the potential to address many current challenges healthcare systems face. Benefits of its implementation are anticipated for all stakeholders. These include better quality of care as patients have their essential health data accessible to their different health providers, the provision of relevant, timely, up-to-date information that contributes to knowledge exchange for collaborative decision making across specialities and among multidisciplinary teams of health care professionals, thus, improved communication with patients and families.
This creates a unique opportunity to shape and evaluate the delivery of this component of the digital system at GOSH for the benefit of all stakeholders involved. ‘World Café’ workshops form Phase 1 of a study which aims to explore the expectations, benefits and challenges, information and support needs of children and young people and parents transitioning to EPR and MyGOSH patient portal, including any ethical and legal implications that may arise. World Café methodology enables the generation of ideas, the sharing of knowledge, and stimulation of innovative thinking. The informal ‘café-style’ environment is welcoming, enabling the exploration of issues through small group discussion (Burke and Sheldon, 2010). The findings from Phase 1 workshops will inform the development of a survey for each group of participants taking part in Phase 2 - a Trust-wide concurrent mixed-methods pre and post implementation study that will evaluate the impact that becoming a digital hospital has on patient, family and staff experience, interactions and outcomes. A further IRAS application will be made for Phases 2/3. A copy of the survey will be shared with participants once developed to pilot it.
REC name
North West - Haydock Research Ethics Committee
REC reference
18/NW/0624
Date of REC Opinion
4 Sep 2018
REC opinion
Favourable Opinion