GENESIS
Research type
Research Study
Full title
A GENEric Standardised Item Set for remote assessment questionnaires in outpatient services.
IRAS ID
356413
Contact name
Susanna Dodd
Contact email
Sponsor organisation
University of Liverpool
Duration of Study in the UK
1 years, 2 months, 30 days
Research summary
Since the COVID pandemic NHS specialist clinics are increasingly adopting digital technologies to administer remote assessment questionnaires (RAQs) to monitor service users health in between consultations. Digital transformation of outpatient services and the use of RAQs may not only save time and resources (i.e. unnecessary hospital attendances) but also have potential to revolutionize the management of chronic illnesses, ultimately improving the lives of countless individuals.
However, despite the increased use of RAQs there appears to be no explicit guidance on their development and implementation to best support patient care. Therefore, variation exists across outpatient services and clinical specialities, in terms of use case, format and content.
The GENESIS study aims explore the current use of remote assessment questionnaires (RAQs) in outpatient services, to assess the feasibility of standardizing RAQs and to develop guidance around RAQ development and use to better support patient care.
GENESIS aims to engage three keys stakeholder groups: outpatients and the public; clinical staff working in outpatient services; and people working in health data governance and informatics e.g. Chief Clinical Information Officers.
Questionnaires tailored to each stakeholder group will capture current NHS practices around RAQs and will explore experiences around RAQ use. A selection of blank RAQs will be collated to analyse content. Interviews with patients and clinical staff and a focus group with people working in health informatics will explore potential areas for standardisation in terms of format and questions. A Delphi survey with all stakeholder groups will agree key content and areas of standardisation
Project outputs will include the development of a classification system for RAQs based on content and reasons for use, and a guidance document to support future RAQ development and implementation based on recommendations from key stakeholders.REC name
West Midlands - South Birmingham Research Ethics Committee
REC reference
25/WM/0176
Date of REC Opinion
10 Sep 2025
REC opinion
Further Information Favourable Opinion