Food-related quality of life in Inflammatory Bowel Disease
Research type
Research Study
Full title
Measuring the burden of food-related quality of life in inflammatory bowel disease: developing interventions that are relevant to, and designed by, people with IBD.
IRAS ID
216842
Contact name
Keith Brennan
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 10 months, 31 days
Research summary
Food is an important part of people’s lives. It can be a source of pleasure, a method of coping and an important means of social interaction. Previous research has shown that these experiences can be profoundly altered in people with inflammatory bowel disease (IBD), as many felt excluded from social interactions involving eating and drinking, some limited the amount of food consumed, and some felt stressed and anxious due to uncertainty of the impact of eating on bowel function. However, we do not know how many people are affected by these problems, what the most common problems are, or why and when they occur. More importantly, we do not know how to help people affected by these problems. This two phase study aims to:
Phase 1: Measure the extent and type of problems with food-related QoL in people with IBD: A national survey will be undertaken with 1,525 people with IBD. They will be asked to complete the Food-Related QoL and other questionnaires, e.g. demographic, dietary intake and nutritional status. This will allow us to calculate how many people experience food-related problems, what the most common problems are, and what affects their severity.
Phase 2: Involve people with IBD in developing tools to help others address these problems: People with IBD who have experienced problems of food-related QoL, and who have managed to successfully address these, will be invited to take part. We will start by understanding the potential approaches to addressing the problems from the perspective of patients and health professionals. Then, joint patient/health professional meetings will take place with the use of film/audio ‘patient stories’ so that all involved can understand what the issues are and how best to resolve them. The tools to help address food-related QoL in IBD will be developed in a series of up to five meetings.REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
17/YH/0044
Date of REC Opinion
10 Feb 2017
REC opinion
Further Information Favourable Opinion