Follow-up of people with Down Syndrome

• Research type

  Research Study

• Full title

  Follow up of a cohort of people with Down Syndrome at 50 years old

• IRAS ID

  150928

• Contact name

  Janet Carr

• Contact email

  janetcarr@freeuk.com

• Sponsor organisation

  University of Kent

• Research summary

  This study aims to follow up a cohort of people with Down Syndrome of 50 years of age, to examine their cognitive,social and educational functioning. The study is a longitudinal one and commenced when the participants were 6 weeks old. It is the longest follow-up of people with Down Syndrome in the world. At this stage of their lives, a major focus of the study will be on how well they have sustained their functioning and the possibility, particularly cogent in this population, of the development of dementia.

• REC name

  Social Care REC

• REC reference

  14/IEC08/0017

• Date of REC Opinion

  17 Apr 2014

• REC opinion

  Favourable Opinion