FMS and men
Research type
Research Study
Full title
Understanding the experience of men living with Fibromyalgia in the UK
IRAS ID
361168
Contact name
Jennifer Pearson
Contact email
Sponsor organisation
University of the West of England
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
Fibromyalgia is a long-term condition that affects up to 5.4% of the UK population. It is characterised by widespread pain, fatigue, and sleep problems. The current treatment guidelines recommend exercise and self-management. Although anyone can develop fibromyalgia, it is often seen as a “women’s illness” because most people diagnosed are women.
Living with a long-term condition can be challenging for men, as it may conflict with traditional ideas of masculinity. Men are also less likely to seek help or receive social support, which can negatively affect their mental health. Research in other long-term conditions shows that men often prefer practical support and use different coping strategies than women. However, current treatments in rheumatology do not reflect these differences, and very little research has focused on men with fibromyalgia, especially in the UK.
This study, funded by the Bath Institute for Rheumatic Diseases, aims to better understand the experiences, self-management strategies, and support needs of men living with fibromyalgia. The results will inform clinical practice and support the development of more inclusive and effective services for men with fibromyalgia.
We will recruit 30-40 adult men with fibromyalgia through patient charities, social media, existing networks, and selected NHS sites acting as participant identification centres. Participants can choose to join a 90-minute focus group (online or in person at the Royal United Hospitals, Bath) or take part in a one-to-one online interview lasting up to 60 minutes. Recruitment will begin as soon as possible and close by 31 October 2025.
REC name
HSC REC A
REC reference
25/NI/0120
Date of REC Opinion
11 Sep 2025
REC opinion
Further Information Favourable Opinion