Feasibility of the NIDUS-family intervention for independence at home
Research type
Research Study
Full title
Assessing the feasibility and acceptability of a psychological intervention for family carers and people living with dementia in their own homes: A feasibility study for stream two of the NIDUS (New interventions for Independence in Dementia) programme
IRAS ID
259249
Contact name
Claudia Cooper
Contact email
Sponsor organisation
University College London
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Our study is funded by the Alzheimer’s Society and led by University College London in collaboration with the University of Bradford. The study will inform the Alzheimer’s Society fix dementia care campaign. This application is for the feasibility trial of part two of a larger programme of work. In part one, we carried out interviews and observations with family carers, people living with dementia and professionals on what helps and hinders independence at home. We used our findings to co-produce an intervention for people with dementia and their family carers to improve the support received by people living with dementia in their own homes. We now wish to pilot this intervention to see how acceptable and feasible it is to deliver in practice from the family carer, person with dementia and researcher perspectives.
We will recruit 15 family carers and people with a dementia diagnosis who live at home through NHS memory services and GP practices. A trained researcher will deliver the intervention to family carers/people living with dementia in up to eight sessions over a six-month period. The intervention will be tailored to each individual's preferences and needs and will involve setting and monitoring progress with goals and priorities, signposting people to existing resources and services and identifying activities that participants can take part in to help them achieve their goals.
Participants will be asked to complete questionnaires on goal attainment, quality of life, activities of daily living, symptoms and service use. Participants and researchers will be asked about their experiences of delivering and receiving the intervention.
We will obtain informed consent from everyone who is able to decide whether to take part. We will include people living with dementia who do not have capacity to consent, and will abide by the Mental Capacity Act where we do so.
REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
19/LO/0423
Date of REC Opinion
20 May 2019
REC opinion
Further Information Favourable Opinion