Feasibility of the Multiple Sclerosis Performance Tool in MS patients

  • Research type

    Research Study

  • Full title

    Feasibility of the Multiple Sclerosis Performance Test (MSPT) tool for assessment of functional performance measures in Multiple Sclerosis (MS) patients

  • IRAS ID

    243039

  • Contact name

    Matthew Craner

  • Contact email

    matthew.craner@ndcn.ox.uk

  • Sponsor organisation

    Biogen Idec Research Limited, UK

  • ISRCTN Number

    ISRCTN00000000

  • Clinicaltrials.gov Identifier

    NCT00000000

  • Clinicaltrials.gov Identifier

    NCT03926637, NCT Number

  • Duration of Study in the UK

    2 years, 6 months, 1 days

  • Research summary

    Multiple Sclerosis (MS) is a chronic autoimmune disease of the central nervous system (CNS) causing neurological disability. The routine measurement of neurological and neuropsychological impairment and disability remains challenging, largely due to the time constraints placed on medical professionals.

    The MS Performance Test (MSPT) assessment tool has been developed via collaboration between Biogen and the Cleveland Clinic Mellen Centre and is designed to measure the major motor, visual and cognitive function data, and quality of life outcomes, associated with MS and related disorders. These assessment modules of the MSPT are self-administered by MS patients at the point of care.

    This observational study sponsored by Biogen will examine the use of the Multiple Sclerosis Performance Tool (MSPT) in a real world setting. Approximately 6,400 participants will be recruited from 20 centres in the United States, 5 centres in Italy, 5 centres in France, and 2 centres in the UK.

    The study period will consist of screening and self-administration of the MSPT during routine clinic visits over a follow-up of up to 24 months. The end of study will occur when the last study participant has their final routine visit, defined as a routinely scheduled visit in the 18-24 months period after their baseline MSPT assessment.

    The data collected at enrolment will coincide with a routine clinical visit to the Investigator. Subsequent data will also be collected during routine clinical visits for up to 2 years from enrolment. Visits are anticipated to occur every 6-8 months, but may vary according to the site's standard of care.

  • REC name

    South Central - Oxford B Research Ethics Committee

  • REC reference

    20/SC/0017

  • Date of REC Opinion

    12 Mar 2020

  • REC opinion

    Further Information Favourable Opinion