Family Factors Study
Research type
Research Study
Full title
Factors affecting diabetes self-management in young people and their families: a qualitative study
IRAS ID
270425
Contact name
Anitha Kumaran
Contact email
Sponsor organisation
University of Southampton
Duration of Study in the UK
0 years, 2 months, 27 days
Research summary
Family is an important factor in the self-management of type 1 diabetes by children and young people. Existing research has explored the experience of living with diabetes, considered from the perspective of children and parents, but has not provided children’s diabetes teams with the information they need to support young people with higher blood glucose levels, and therefore higher risks of long term complications related to their diabetes.\n\nDuring this qualitative study the researcher will meet with young people (aged 12-15yrs) and their families for a joint interview, held in the family home, exploring the factors which they consider important in diabetes self-management. One interview will be held with each family. Recruitment of 8 families is planned.\n\nThe interviews will be recorded and transcribed to allow thematic analysis, allowing identification of common factors considered to be important by families.\n\nThe HbA1c of young people with diabetes is checked regularly in clinic and provides an assessment of blood glucose levels over the preceding months. Higher HbA1c levels are associated with higher risk of long term complications.\n\nThe index young people will be recruited in 2 groups: one group will have lower risk of long term complications (identified by an HbA1c level of <58mmol/mol). The other will have higher risk (HbA1c 75-100mmol/mol). A comparison will be made between the families in each group, to identify which themes are more common in the lower or higher risk groups.
REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
20/YH/0021
Date of REC Opinion
22 Jan 2020
REC opinion
Favourable Opinion